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Is it possible to place limits on the self-determination of your own genetic data? Certainly, and there is an urgent need for it!

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2021-01-01
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Università di Trento
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Voluntary disclosure of data is becoming an increasingly common practice. The problem is that these actions can seriously harm the relatives of those make such disclosures. This could happen with genetic data, which belongs to all persons about whom it provides information, regardless of who the sample donor is. What can be done in this situation? We defend the idea that they are the rights conferred by the GDPR to data subjects. On this basis, any processing of genetic data should be seen as an exercise of balancing interests, except where the need to respect professional secrecy requires otherwise.
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DTC tests, Voluntary disclosure of data, Informational self-determination, Collective data, Data of relatives
Bibliographic citation
de Miguel Beriain, I., & Jove, D. (2021). Is it possible to place limits on the self-determination of your own genetic data? Certainly, and there is an urgent need for it!. BioLaw Journal - Rivista Di BioDiritto, (1S), pp. 209–222.